I am 29 and still wet the bed at night and have problems with my brain getting the signal to go to the bathroom during the day. For this reason, i have bladder accidents and less frequently, bowel accidents. I often don’t know until it’s too late. Even though setting an alarm helps, I still have to wear GoodNites (pull-ups) during busy days or NorthShore Supreme medical diapers at night.I know it’s not my fault since I have a lot of medical conditions that affected my development. (Hydrocephalus, brain bleed from being born premature, spine/nerve issues) I also have Autism and Tourette’s Syndrome, but I just feel like I’m the only one.Is there anyone else with similar experiences? I appreciate everyone in helping me feel less alone in dealing with my medical conditions.
Not me personally but I had an extremely good friend growing up that had the same issues from hydrocephalus and other things. She had Aspergers and was one of my absolute best friends. Angela was amazing.
Im sure your amazing too!! I’m really sorry you feeling alone. That’s so rough. Hang in there.
Kyla C Talley
My son has bowel accidents that have been linked to his autism and exactly like you said his brain doesn’t get the signal and he can’t feel it. I’m so glad I can tell him he’s not alone.
Kyla C Talley I’m embarrassed to admit I still wear GoodNites (pull-ups) and use a bathroom timer during the day as I don’t get my bladder and bowel signal til I’m about to have an accident or I’m already having one. I’m more embarrassed to admit that I don’t get the signal for either of those at night, and I had to switch from pull-ups to tape-on medical diapers in high school when they stopped working at night. It helps to know I’m not alone.
Get a pure wick system… it will keep you dry at night
Now a bit different by age and medical conditions but my daughter who is now 9 has/had bladder issues. They put her on medication to help her bladder muscle basically not contract as often. The side effect that is most troublesome is dehydration but we make sure to have Pedialyte on hand and water all the time. Maybe discuss with your provider if you can try it.
She’s been accident-free for months since starting it !!
Candi Mittauer De-Jesus
My grandson has bowel accidents occasionally.
He wears pull-ups at night. Where do you get the Supreme? When he visits every other weekend, I usually end up having to was everything.
Candi Mittauer De-Jesus they are from a webshop called Northshore Care Supply. I wear the tape on ones. Im embarrassed to admit that, but if i have a bowel accident at night or wet the bed, they don’t leak like my daytime pull-ups (GoodNites) would at night.
Candi Mittauer De-Jesus
Ben Enz Thank you very much.
Just wanted to say this is very well written. You did a superb job expressing your thoughts. Sending positivity to you.
Ben- Please relax. A lot more people in this world have the exact same problems you have. Don’t worry about it. Just let it run it’s course. You need to enjoy your life. You are a very very special gift from Jesus Christ
Your not alone. My son has trouble going to the bathroom. Like you said the brain doesn’t tell him he has to go. He has asd and add.
Denise Sandoval Im embarrassed to admit I still wear GoodNites (pull-ups) and use a bathroom timer during the day as I don’t get my bladder and bowel signal til Im about to have an accident or Im already having one. Im more embarrassed to admit that I … See more
Ben Enz I will have to tell my son to go see if he needs to go. Maybe you need both a timer and some one to tell you. Of go to the bathroom before the timer goes off.
you are absolutely not alone! you are so brave and amazing for making this post! ❤️ there is no need to be embarrassed at all! you’re awesome 🥰
Kim Kirksey Dill
My teen granddaughter does not get bladder or bowel signals due to her spine being tethered. This effects nerves to her bladder, bowels, legs, etc. She watches her intake and schedules her bathroom brakes to ensure no accidents.
Kim Kirksey Dill Im embarrassed to admit I still wear GoodNites (pull ups) and use a bathroom timer during the day as I don’t get my bladder and bowel signal til Im about to have an accident or Im already having one. Im more embarrassed to admit that I… See more
Kim Kirksey Dill
Ben Enz Given other posts and mine you can be assured you are not alone.
Zackary Ray Foote
Ben Enz I have autism and the same here but I have been wearing parent choice sized 6 I’m not afraid to admit it because it’s the way the cookie crumbles you can’t control what is uncontrollable you can only control what you do. If life throws you sou… See more
Zackary Ray Foote it helps a lot knowing im not alone
Donna Leino Grissom
You’re still smiling too! What a champ!
Stephanie Lieber Johnson
Hi, grandma to two autistic grandchildren here. There is a Facebook page run by a doctor called Bedwetting and Accidents. It’s geared mostly towards children, I found it while trying to figure out why my nine-year-old grandson was having accidents at school. Chronic constipation can cause bed wetting. You might check it out!
My daughter still has accidents and is 20. She also has autism. You are not alone.
Nicole Lea Porter Im embarrassed to admit I still wear GoodNites (pull ups) and use a bathroom timer during the day as I don’t get my bladder and bowel signal til Im about to have an accident or Im already having one. Im more embarrassed to admit that … See more
Nicole Lea Porter
Ben Enz I also have accidents all the time due to my spine pinching nerves. I have had accidents in stores and it leaked out the diaper and onto the floor. That has happened more then a few times. It is so embarrassing and I feel humiliated. I totally get it. It has caused me to poop myself when asleep and I have.to wake my husband up so I can clean the sheets. I am 41 years old.
Nicole Lea Porter ive had bowel accidents asleep too. Embarrassed to admit, but the diapers i switched to in high school help a lot
Nicole Lea Porter
Ben Enz the pads and diapers in the store don’t work that well. I don’t know where to get better ones
Nicole Lea Porter It’s why I had to switch from GoodNites at night to Northshore Supreme tape-on diapers from NorthShore care supply. (Embarrassed to admit they are plastic on the outside and thicker, but help with my bladder and bowel accidents.) Pull ups during the stay I still use GoodNites, mainly because I’m a size Youth Large, so not a lot of other adult pull-ups fit me. I just get embarrassed because they are for bedwetting kids (what I wore them for until high school when leaking started) so they sell them near the “other kind of diapers” and not Depends.